ALS(o) have this on my M(i)ND…


And so it came to be that I was eventually nominated to do the ALS / MND Ice Bucket Challenge by a good friend of mine. Without a doubt the cause is just, those folks out there that suffer from this affliction must go through a living hell. Just knowing that once diagnosed, one is subjected not only to a reduced lifespan the average life expectancy following positive diagnosis of a mere 36 months until death, but a daily degradation of physical service whilst the brain and consciousness remains untouched. A prison without walls.

Stephen Hawking is living proof of what MND does to the body and not the brain. He has defied the odds in terms of MND life expectancy and lived to a ripe old age thus far all things considered, and the scientific world is surely glad for that.

Facebook is often pilloried, but I think in this case it has been used globally as a positive tool to raise both awareness and funds for ALS and MND. Every second news feed at the moment is a video of someone taking part in their own “challenge”. It is a bit of fun for those that wish to participate, and also a vehicle for those who do not wish to participate in person, but either chose to donate to ALS / MND or to donate to other charities (for example a friend of mine’s view point was that all the wasted water concerned him, so instead he chose to donate some funds towards Water Aid), which is great too.

Personally, I chose to take part in the Ice Bucket Challenge, albeit with my own slant on it, and I had fun doing it and followed it through with a donation to MND:

http://youtu.be/kU8MIrAg8WI

However (there always seems to be an however with me), there is a part of me which remains sceptical about donations towards research, not just for ALS / MND, but for any body looking at providing cures for world ills. That part of me is concerned that the funds raised are either misappropriated or not channelled into the right places.

Taking ALS / MND as an example, £50m has been raised in one month, fantastic, but where is it going and what is it going to be used for? Will it be handed to Big – Pharma for them to use it as a way to produce a new synthetic chemical to treat the symptoms and not challenge the root cause and make a tidy profit from it all? Will it look deep into the genetics of the disease and look to eradicate it from happening in the future via a post-modern eugenics movement of sorts? Will it look into complementary therapies like yoga, meditation and reiki to see if these alternative self-healing techniques can aid or assist recovery or combat it’s onset?

All of these questions remain unanswered to me at present, but it’s something I’ll look into, but I do hope that the funds do end up in the right place and used in the right way.

This whole issue really got me thinking, and I think that it is no coincidence (I don’t see coincidences anymore – just breadcrumbs) that I started to watch the Channel 4 series Utopia (available in the UK and on Netflix) at exactly the same time as the Ice Bucket Challenge kick off.

In short, the story follows a small group of people who find themselves in possession of the manuscript sequel of a cult graphic novel called “The Utopia Experiments” which is rumoured to have predicted the worst disasters of the last century. This leads them to be targeted by an organisation known as “The Network”, which they must avoid to survive. Using the manuscript, they must uncover the meaning hidden in its pages before the disasters depicted become reality.

Without spoiling it too much for anyone that hasn’t seen it, the fundamental theme relates to the ever increasing world population, how the future demand for planetary resources will exponentially increase and whether via a ‘humane eugenics movement” is something that we could or should put in place to control the population explosion as a way to extend our existience on our little blue dot.

So this is where I get controversial and perhaps hypocritical to my original gambit about ALS and MND. As a human race, we need death. We need death by any means. Should we just treat the symptoms and keep these things around, but make sure that those who have them do not suffer? No matter how you slice it, global population growth at the rate we have seen it over the last 200 years is completely and utterly unsustainable when mapped against projected resource decline. I was frankly amazed by the following statistics relating to world population studies:

  • 35k BC = 3 million
  • 10k BC = 15 million
  • 1400 = 375 million
  • 1804 = 1 billion
  • 1927 = 2 billion  
  • 1959 = 3 billion  
  • 1974 = 4 billion  
  • 1987 = 5 billion  
  • 1999 = 6 billion  
  • 2012 = 7 billion  
  • 2026 = 8 billion  
  • 2042 = 9 billion
  • 2060 = 10 billion

A little over two hundred years ago, there were only one billion homo sapiens on Planet Earth. We have added six billion people to that amount over the last two centuries.

By the year 2060, there will be an estimated ten billion of us on a planet that is very quickly running out of natural resources. So what are we doing about it?. Rather than looking into the mid-term future and concentrating our research efforts into safe, renewable and sustainable energy sources, instead we invent new ways of raping the geological stratas underneath the Earth’s surface as a way to satisfy our immediate need for energy, much to the detriment of the climate and our precious water table.

All this is to satisfy future demand they say as renewable energies cannot satisfy the supply versus demand curve. Those who will be able to afford energy in the future will be able to pay for it, but with advances in automation and an ever increasing demand for energy (from the needs of a ballooning population), those that cannot will be pushed even further away from the “haves” causing an inevitable future class war of epidemic proportions. It seems that our train is heading towards George Orwell’s vision as laid out in 1984, or Kurt Wimmer’s dystopian world as seen in the film Equilibrium, and the brake cables have been severed.

Of my home town during the Toxteth Riots of 1980, Margaret Thatcher (the then Prime Minister in the UK) said that Liverpool as a city was expendable, and that it should be placed under managed decline until (I guess) it either ceased to exist or it became manageable (a truly awful statement said about one of the most historic cities the world has ever known (not always for the right reasons)).

So for me, the Utopia series really does address and ask us a key question of the future, albeit through shocking graphics and a very disturbing storyline. Should we be managing our own decline globally? Should we put in place a humane eugenics movement for the greater good of our offspring to try and kerb global population booms in an effort to avoid wars and the continuing fight for natural resources (in the likes of Iraq) and inevitable plunge into dystopia?

Would it be our place to put in place such a drastic action (taking over the role of the Creator if such a thing exists), and has evolution turned such amazing potential into nothing more than a collective marauding beast which will stop at nothing including it’s own inevitable destruction?

Or do we say fuck it, let’s live the dream whilst we can, because tonight I’m gonna party like it’s 1999?

My belief is that the inevitable catastrophic decline will happen (via a global war), and that at some point, mankind (if indeed it still exists post-apocalypse, albeit in significantly smaller numbers) will rightfully have no alternative but to turn our future way of life into resource based economies as detailed by The Venus Project, as the value of currency will quite literally not be worth the paper it is printed on.

Wouldn’t it be awesome if we could change the paradigm into The Venus Project today. I’d move there tomorrow (I mean today)…

2 thoughts on “ALS(o) have this on my M(i)ND…

  1. Copied from Facebook response:

    Interesting piece and reminds me of several conversations I’ve had in the recent past.

    As awful as it sounds when voiced out loud, nature has (had?) It’s own way of population control. They used to be called colourful names like pestilence, drought, famine etc. However, as a species, we’ve found a way to overcome nature’s defences and, by saving people who would have normally fallen foul of these ills, have become the potential masters of our own downfall.

    We save people from drought/famine, not only does the affected population stay alive, they have the chance to reproduce, which exacerbates the problem. We find cures for diseases and cancers, we find ways of living longer (humans shouldn’t live beyond 40, 50 tops, but not any more) and we breed more (almost uncontrollably).

    It’s the same old story of cause and effect and while it’s an unpalatable thought when applied to humans, how often do natural history programmes just stand back and watch when a herd of wildebeest are killed by drought or disease as we don’t want to interfere with nature’s way and upset the balance ? Wildebeest don’t strip the world of its resources and breed uncontrollably, humans do and we then find ways of beating everything that nature does to stop us, upsetting all kinds of balance. Maybe we should treat humans more like the wildebeest ?

    From a purely objective perspective, charities that help fight against these natural defences actually do more harm in the long term.

    But from a subjective perspective, it won’t stop me supporting them 😉

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  2. I regularly donate to charity but often feel conflicted as I am not always sure how much will go towards ‘administration costs’. However, some charities are extremely efficient and only use a small amount of donations for these costs.

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